What About the Boy?

A Father's Pledge to His Disabled Son

by Stephen Gallup

Archive for December 2014

 
 

“I didn’t see the writing on the wall, until it was gone”

paint_roller_on_calligraphy

For about a year in my early 20s I lived with a bunch of other young people in an old three-story house very close to the University of Virginia. Everyone there was either a grad student or a recent graduate with at least one foot still back in the ivory tower. Individually, no doubt we all had issues and insecurities, but together we had synergy. Without consciously trying, we created what felt like a magical time and place. The larger sphere around us offered on a regular basis events that ranged from square dances to appearances by visiting authors and scholars, but I could count on finding diversion any time I ventured outdoors or even just downstairs to the common area of the house.

Then, gradually, things became less amusing. Some of my favorite people moved away, and I perceived that the day would come when they’d all be gone. And, like it or not, I too needed to conclude what I’d been doing, move out into the real world and apply myself to whatever it was grownups did.

Good situations like that should be enjoyed and treasured while they last. But they tend to be ephemeral. I recall a well-known ad from that general time frame in which a wine maker promised to “sell no wine before its time.” Conversely, I observed, one also cannot hang on to something past its time. It’s wrong to try. Impermanence is a feature of life, and regardless of the value judgment placed on a given piece of life, this too always passes.

A church bought the rooming house in which my friends and I had been living, and made clear their intention that the place was going to become more respectable. That’s not to say it had been particularly disreputable, you understand, but nevertheless the new owners meant to put their stamp upon it. They began by repainting the walls, obliterating in the process some Chinese graffiti that I’d never been able to read but that contributed, I thought, to the general groovy atmosphere.

The “Kung Fu” television series was popular in those days, and in my head I heard Master Kan kindly saying to young Caine, “Time for you to leave.”

*     *     *

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Decades have passed, and every so often that general scenario recurs, with variations. The moment of change seems to involve backing up a step and getting a renewed grip on that which is most important, before trying again. It feels like working with a socket wrench (albeit one prone to slipping off the bolt). 

The concluding pages of What About the Boy? mention a stimulating new job into which I was fortunate enough to find my way in mid-career. A downturn in the aerospace industry had just claimed my previous job, cancer had just claimed my wife Judy, and our son Joseph was turning out to be far more seriously afflicted by his disability than we’d ever anticipated. All those declining trajectories had followed roughly parallel courses. My needs at that point may seem modest, but felt like a big order to me: I wanted to know if it were possible for anything at all to work out. Something did. I joined Qualcomm when it was still a fairly small company and played a humble, supporting role in the emergence of CDMA technology and worldwide use of mobile telecommunications. I learned, grew, and had an enormous amount of fun in the process. And thus enabled I could accept the blessings of a second marriage and in due course two more kiddos.

Life had turned around. I mean, it did a one-eighty! I still worried about Joseph, of course, still sought to help him in any way possible, but knew the importance of embracing the blessings I’d been given.

More time has passed, and on the professional side the ground is shifting under my feet again. New people are in charge of the company. You might say that they are painting the walls. I am among 600 employees who have gotten severance notices on this particular swing of the scythe.

Most people who hear of this express sympathy and talk about unfairness. They note (correctly) that what we call security is an illusion. Of course, that should come as news to no one. Similar observations are made every time a company lets people go. But one friend leaped over all the boilerplate and simply offered congratulations! Because security isn’t really secure, no growth occurs in clinging too long to something that has grown comfortable. Transitions provide an opportunity to discover what other treasures life still has in store, and to find new ways of contributing. Now, I do confess to feeling a certain amount of anxiety, because four others in my family are depending on me. It comes in waves, alternating with moments of calm. The calm is based on my conviction that the source of blessings will not run dry. And so, in the back of my mind, a little voice sometimes whispers …

“Liberation”

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Peak Reading Experiences of 2014

The more you read...

This morning Goodreads announced its annual winners for books new in 2014. They say over 3 million votes were cast in the process of choosing these titles. As always, I couldn’t participate. I wanted to. But once again, despite all the reading I do, I hadn’t gotten around even to one of their entries for any of the 20 categories.

And incidentally, I can’t help wondering how many of those 3 million votes reflect opinions of people actually familiar with all the competing titles—you know, as opposed to simply liking the one book or author they knew. I suspect that number is very small, which means the whole exercise is just an excuse, as if one were needed, to talk about books.

Well, this happens every year. And every year, for whatever it’s worth, I respond by sharing a short list of books that I found memorable and worthy of attention. Not all of the following came out in 2014, but many did. They’re not ranked in any particular way, but all contributed to my growth and enjoyment. Click the titles to see more complete write-ups. (Previous year-end lists are here, here, and here.)

Serve in Hell, by Georgia Gunn

I discovered, after reading this novel and posting my review, that I know the author (she was using a penname). One constant that seems to apply with this author, whether writing under her own name or not, is her refusal to participate in the circus of book promotion. Every now and then she generates a piece of high-quality literature and sets it loose to find its own way in the world. The world being what it is, not much happens (not that anything is guaranteed even with aggressive promotion). Mere chance brought the title to my attention. I’m bringing it to yours in case you’d like to try a very original fantasy that raises serious questions about the meaning of honor and hope.

Dreamer, by Daniel Quinn

Over the years Daniel Quinn has acquired some dedicated followers (disciples?), primarily through his more famous works. Although originally published a quarter-century ago, Dreamer was re-released last year, and it still merits attention, especially from readers interested in the nature of consciousness or simply those looking for a wild ride. This novel is definitely a page-turner, filled with suspense, unexpected developments, and compelling characters.

How Evan Broke His Head and Other Secrets, by Garth Stein

This one probably gets the prize for the best-constructed novel I’ve read this year, and possibly the one I found most touching as well. The focus is on a talented but only marginally successful young guitar player named Evan. For years he has been living with a variety of problems, not least of which is the fact that he has epilepsy and has been taught to “hide his horrible secret from the world [so as to] live a life without a sign around his neck that says KICK ME, I’M A CRIPPLE.” There’s a story behind how he acquired that disorder, too. Given the time of year of this post, I’ll add that its benevolent view reminded me somewhat of the classic movie It’s a Wonderful Life.

Big Brother, by Lionel Shriver

I recommended a Shriver novel last year as well. This one, I think, might be easier going in terms of the subject matter and more hopeful mood. Whereas We Need to Talk About Kevin is about looking back at tragedy in hopes of learning or salvaging something of value, Big Brother is about choosing to leap into a difficult situation in hopes of averting tragedy. The chances of success are not good, and even succeeding may come at a pretty high cost. But given the cause, neither of those considerations is reason not to try. Big Brother reminded me very much of the campaign dramatized in my own book.

In the Garden of Beasts: Love, Terror, and an American Family in Hitler’s Berlin, by Erik Larson

I always include nonfiction works in my reading, and this piece of scholarship really brought a piece of history alive for me. In some accounts, past events acquire a feeling of inevitability. We have the historical record of what happened at a given time, in this case Germany of the 1930s, and for us the details may seem as dead as beads on a string. Of course, it was a different matter altogether for people living through those events, whether they were frightened or disposed to look on the sunny side and hope for the best. Working from their diary entries and letters, Erik Larson invites (I think) his readers to imagine themselves in a comparable situation, or perhaps even to see parallels in their own experience.

* * *

This was a good year for reading. Many other titles deserve honorable mention, e.g., Life and Death in Shanghai, Doomsday Book, and even a Michael Crichton novel. Thank God for the opportunity to appreciate books! In conclusion, I hope you’ll pardon my inserting a plug for the upcoming audio version of What About the Boy, which I talk about below. At the moment, 11 chapters have been recorded, and it’s on course for release very soon.